Sunday, March 27, 2005

On Terri Shiavo, medical malpractice, and bulimia

In the ongoing discussion about Terri Schiavo, one of the forgotten topics is the disorder that started the whole thing: Schiavo had bulimia, and the doctors' failure to diagnose it is what led to the potassium balance, which led to the heart attack. The elected representatives who are screaming about the "injustice" of the courts are the same elected representatives who have fought day and night to prevent families like the Schiavos from having legal recourse against physicians who screw up. This is a matter that the news media has chosen to ignore, choosing instead to show endless close-ups of Schiavo in her disabled state. The Republicans in Congress believe that making a circus show of your family is far superior to providing some sort of compensation for medical malpractice.

That a physician should miss the diagnosis of what was obviously an advanced case of bulimia is alarming. Simple medical tests and interviews with family members point to the diagnosis, and a dental exam confirms it. It is a sad irony that a woman who had bulimia is spending her final days as the subject of an international feed her/starve her argument. Though there has been no public discussion of this irony, it has doubtless gotten the attention of mental health professionals everywhere.

Bulimia nervosa is a very serious disorder which causes the body's chemistry to go awry, as in the case of Schiavo. Though men suffer from it, it is primarily a disorder of girls and women. In my own psychotherapy practice, the majority of my clients with bulimia would not be considered overweight, but they perceived that they were fat. There is no doubt in my mind that the bombardment of images of rail-thin women via television, film, and magazines is a major contributor to women's distorted views of their own bodies.

But bulimia is about more than a distorted view of one's body. All of the bulimic females I have treated had significant issues with their mothers: There is a primal connection between food and mother for all of us. Many bulimic women also come from families in which food intake was constantly discussed and one or both parents nagged about possible over-eating. And all of the bulimic girls and women I have treated had very high anxiety. An eating binge--like a spending binge or any other kind of binge--temporarily relieves anxiety by permitting the eater to "space out." But after the binge, the person feels great shame, and therefore is led to perform another binge ritual in order to escape the shameful feelings.

In my experience, women with bulimia can get rid of their disorder by learning better ways to cope with their anxiety, by resolving possible conflicted feelings about their mothers, and by learning to like themselves enough that they no longer want to abuse their bodies. Though we have had many public discussions about both bulimia nervosa and anorexia nervosa, perhaps it is time to have another one. It would certainly be more productive than the freak show that is taking place now.

7 Comments:

You say: "Schiavo had bulimia, and the doctors' failure to diagnose it is what led to the potassium balance, which led to the heart attack."

And you are wrong. The doctor's failure to diagnose Schiavo's bulimia did not lead to her potassium imbalance...Terri's purge did. Period. A medical diagnosis does not necessarily lead to immediate treatment, nor does immediate treatment necessarily lead to recovery of an eating disorder. In fact, treatment is often ineffectual for women with eating disorders. I speak from experience: I have been bulimic for eight years and have been through numerous counselors, etc. And last night I binged and purged.

Believe me, the incompetence of my doctors throughout this whole experience has disgusted and saddened me, but to blame one particular doctor for Terri's current state is simply ridiculous, even if that doctor did fail to diagnose her disorder. I want the medical field to wake up and pay attention to what is happening to so many young women today, but making false claims (i.e. it's my doctor's fault) is not going to do it, nor is "paying off" the victims with malpractice settlements. I, for one, have gotten so heated over the issue that I've made an appointment to review my entire medical history at my local clinic; I plan to obtain evidence to illustrate how neglectful my doctors were when I first began to develop my eating disorder, and then I plan to WRITE EACH OF THEM A LETTER (not sue them for millions of dollars).

By Anonymous Anonymous, at 12:22 PM  

You are correct, of course, that the ultimate responsibility, if you will, lies with the person performing the behavior; however, given that bulimia is an illness, it is not out of the ballpark to put some responsibility on a diagnostic failure.

I agree also that a diagnosis does not necessarily lead to immediate treatment. In cases of bulimia that has advanced to this degree, however, one would hope that the family would have enough information to help the patient make rational and necessary decisions. This is especially true with eating disorders, which are frequently kept secret from patients' loved ones.

All of your points are well taken.

By Blogger Diane, at 3:58 PM  

D.E.D.,
Thanks for this post. I've avoided posting on this topic for many reasons, most of them having to do w/ my anger about how all of our (so-called) morality plays in society are fought out over women's bodies. I'm sick to death of it. I'm more sick to death though of the Right's hysterical screeching. What happened to quiet contemplation and reflection? What happened to privacy?

By Anonymous Anonymous, at 9:03 PM  

Very nice post. I've been kind of disappointed that the world as a whole has really overlooked the bulimia aspect of the entire controversy.

One comment, though - you say that with medical diagnosis, her family might have been able to intervene and help her make rational decisions. It appears (and this is just my perspective) that her family hasn't been terribly astute of her feelings and wishes anyway, and might not have been prepared to help her through something as tough as an eating disorder, even if they had been aware of it.

Not to completely blogwhore, but I took a look at the control aspect of bulimia and Terri Schiavo over at Practically Harmless.

By Blogger ACG, at 10:19 AM  

You are quite right about Schiavo's family, of course. But speaking in a theoretical, general way, a proper diagnosis would give a family something with which to work.

Thanks for stopping by.

By Blogger Diane, at 10:33 AM  

anonymous:
a doctor is a paid professional whose job consists entirely of observing for symptoms on an illness, then treating said illness.
If a security guard, whose job is to observe for warning signs of danger or criminal activity, is negligent (too busy chatting up a cashier for a date, for instance, to notice a shoplifter stealing a jetski) the person who stole the Jetski may be criminally responsible, but the guard's negligence gives him enough culpability to get him fired.

Medicine isn't as easy as watching a security camera, so it's easier to make an honest mistake. so doctors don't have to lose their job after every mistake. but since the mistake caused substantive harm to the victim, they are entitled to some sort of compensation.
which is why malpractice insurance exists

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